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My Story
My name is Kyle, I am a 24 year old male currently residing in Phoenix, Arizona and I have been on quite a journey!
Starting around 5 years ago (fall of 2010) after a trip to the dentist I begin to have very severe Headaches that wouldn't budge no matter what my PCP prescribed. They were the kind of headaches that started at the base of my Neck and wrapped up around my eyes. They were with me day and night for probably just under two months.
During this time, the headaches started to fade but they were replaced by new symptoms. I began to have shortness of breath, excessive post nasal drip, and a rapid thumping pulse. Thinking it was allergy related I saw an allergist who ruled that I was allergic to certain molds and pollens. He prescribed inhalers and tried 3 or 4 different allergy medications. None of which helped.
He referred me to an ENT to do a laryngoscopy to see if I had GERD, which could be causing my issues.
I saw the ENT, and the test did confirm I did have light evidence of GERD on my vocal folds.
I also began having digestive issues, so I transitioned to a gastroenterologist who did a endoscopy to rule out celiac or see if there was anything else going on. The results stated that I had slight GERD, but that is about it.
I saw no improvement on medication, so I had him order a abdominal ultrasound per the suspicion (on my part) that my gallbladder was causing my problems. My gallbladder, kidneys and liver all checked out fine.
He then refereed me to an endocrinologist to see if I was having adrenal problems that were messing with my nervous system. She did a full endocrinological work up and found nothing remarkable (see a pattern here??).
Looking over my file, she noticed there was a note about on my abdominal ultrasound that my PCP didn't catch. It mentioned something about a dark area or mass, so she ordered a MRI which found a tumor down on my psoas muscle, it was biopsied and found to be benign. I had it removed a few months later just to be safe.
After all this, I went the Mayo Clinic and saw nearly all of the same times of specialists, and had tons of lab work done as well as a new endoscopy, a barium swallow, and new spirometry test. Nothing remarkable...
I took some time off of doctors and began having some Back Pain. I went on to see an Osteopath and a few Chiropractors all to find no relief. I decided to see a Rheumatologist just to see if by chance it could be some sort of autoimmune condition. She really didn't come up with much, but we talked about how it seemed possible that I had Ankylosing Spondylitis - an autoimmune arthritic condition. At this point I was so sick and tired of doctors, and after learning that there was nothing a doctor could do for this condition I decided to just call it quite with my time in the medical community. We didn't seem to have too good of an understanding of each other. This was during the spring of 2013.
I didn't really see a doctor until August of this year, and was sort of working under the assumption that I had Ankylosing Spondylitis since I seemed pretty fit and I had no idea what else was wrong with me since I was medically "sound" in pretty much every other way. I began to have a very intense fatigue that began around June or July (2015). It would come and go, but sort of set in pretty hard around August, so that's why I decided to go to the doctor. He ran all sorts of blood work and the only thing that turned up was that I was BARELY pre-diabetic. I began to have fasciculations and random muscle twitches, which he basically boiled down to stress and anxiety.
He even ran the blood test for Ankylosing Spondylitis and ordered an X-Ray to see if I had it... and I didn't!! This sort of shattered my reality because I was certain I had it. After finding this out, that meant that after 5 long years of health problems, I had not a single diagnosis and yet another doctor just sort of shrugging at me. He sent me on my way and told me I needed to learn how to relax. The last time I saw him was in September, and shortly after I started seeing him I began to have numbness in my left Arm. The numbness then spread to a spot on my Leg, and traveled down to my Foot. The numbness also spread from my hand to my Arm. During a panic attack one day (which I have only ever had like 2 of) the numbness spread to my right leg. This was a major sign that everything that was going on with me was sort of "psychosomatic" in a way. The anxiety attack was about my health, and how I have no idea what is wrong/or when I will ever get better.
Because of the numbness, fasciculations, and muscle twitches I decided to see a neurologist. I saw him on Monday and he believed me to be Neurologically sound. He doesn't believe it's even worth my time to get an EMG or MRI to see if I have ALS or MS because I passed his clinical exam so well.
He told me he thought it was more than likely the cause of stress, and told me I really needed to do something about it and potentially consider therapy. I have gone to therapy though, years of it. I was seeing a therapist for a good portion of my "doctor break" from 2013-2015.
I should have mentioned that some time during all of this, probably after I stopped seeing doctors in 2013 I go heavily into mind body philosophy and the subconscious. I have all of John Sarno's books, as well as a few other mind body healing books. I decided to really dedicate my time to finally getting over this by doing a better job of managing my stress as I am sure I simply have TMS/MBS at this point. - Loading...
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My Story
- Gender:
- Male
- Location:
- Phoenix, Arizona
My name is Kyle, I am a 24 year old male currently residing in Phoenix, Arizona and I have been on quite a journey!
Starting around 5 years ago (fall of 2010) after a trip to the dentist I begin to have very severe Headaches that wouldn't budge no matter what my PCP prescribed. They were the kind of headaches that started at the base of my Neck and wrapped up around my eyes. They were with me day and night for probably just under two months.
During this time, the headaches started to fade but they were replaced by new symptoms. I began to have shortness of breath, excessive post nasal drip, and a rapid thumping pulse. Thinking it was allergy related I saw an allergist who ruled that I was allergic to certain molds and pollens. He prescribed inhalers and tried 3 or 4 different allergy medications. None of which helped.
He referred me to an ENT to do a laryngoscopy to see if I had GERD, which could be causing my issues.
I saw the ENT, and the test did confirm I did have light evidence of GERD on my vocal folds.
I also began having digestive issues, so I transitioned to a gastroenterologist who did a endoscopy to rule out celiac or see if there was anything else going on. The results stated that I had slight GERD, but that is about it.
I saw no improvement on medication, so I had him order a abdominal ultrasound per the suspicion (on my part) that my gallbladder was causing my problems. My gallbladder, kidneys and liver all checked out fine.
He then refereed me to an endocrinologist to see if I was having adrenal problems that were messing with my nervous system. She did a full endocrinological work up and found nothing remarkable (see a pattern here??).
Looking over my file, she noticed there was a note about on my abdominal ultrasound that my PCP didn't catch. It mentioned something about a dark area or mass, so she ordered a MRI which found a tumor down on my psoas muscle, it was biopsied and found to be benign. I had it removed a few months later just to be safe.
After all this, I went the Mayo Clinic and saw nearly all of the same times of specialists, and had tons of lab work done as well as a new endoscopy, a barium swallow, and new spirometry test. Nothing remarkable...
I took some time off of doctors and began having some Back Pain. I went on to see an Osteopath and a few Chiropractors all to find no relief. I decided to see a Rheumatologist just to see if by chance it could be some sort of autoimmune condition. She really didn't come up with much, but we talked about how it seemed possible that I had Ankylosing Spondylitis - an autoimmune arthritic condition. At this point I was so sick and tired of doctors, and after learning that there was nothing a doctor could do for this condition I decided to just call it quite with my time in the medical community. We didn't seem to have too good of an understanding of each other. This was during the spring of 2013.
I didn't really see a doctor until August of this year, and was sort of working under the assumption that I had Ankylosing Spondylitis since I seemed pretty fit and I had no idea what else was wrong with me since I was medically "sound" in pretty much every other way. I began to have a very intense fatigue that began around June or July (2015). It would come and go, but sort of set in pretty hard around August, so that's why I decided to go to the doctor. He ran all sorts of blood work and the only thing that turned up was that I was BARELY pre-diabetic. I began to have fasciculations and random muscle twitches, which he basically boiled down to stress and anxiety.
He even ran the blood test for Ankylosing Spondylitis and ordered an X-Ray to see if I had it... and I didn't!! This sort of shattered my reality because I was certain I had it. After finding this out, that meant that after 5 long years of health problems, I had not a single diagnosis and yet another doctor just sort of shrugging at me. He sent me on my way and told me I needed to learn how to relax. The last time I saw him was in September, and shortly after I started seeing him I began to have numbness in my left Arm. The numbness then spread to a spot on my Leg, and traveled down to my Foot. The numbness also spread from my hand to my Arm. During a panic attack one day (which I have only ever had like 2 of) the numbness spread to my right leg. This was a major sign that everything that was going on with me was sort of "psychosomatic" in a way. The anxiety attack was about my health, and how I have no idea what is wrong/or when I will ever get better.
Because of the numbness, fasciculations, and muscle twitches I decided to see a neurologist. I saw him on Monday and he believed me to be Neurologically sound. He doesn't believe it's even worth my time to get an EMG or MRI to see if I have ALS or MS because I passed his clinical exam so well.
He told me he thought it was more than likely the cause of stress, and told me I really needed to do something about it and potentially consider therapy. I have gone to therapy though, years of it. I was seeing a therapist for a good portion of my "doctor break" from 2013-2015.
I should have mentioned that some time during all of this, probably after I stopped seeing doctors in 2013 I go heavily into mind body philosophy and the subconscious. I have all of John Sarno's books, as well as a few other mind body healing books. I decided to really dedicate my time to finally getting over this by doing a better job of managing my stress as I am sure I simply have TMS/MBS at this point.Interact