Connective Tissue Concerns

Hi all,

I’m new to this forum, but not to the idea of mind body medicine. My physical “storm” started in 2013. It’s been a long journey, initially dealing with anxiety, chronic fatigue, dizziness, joint and muscle pain, digestive issues and headaches. I went down the route of being treated for chronic Lyme but eventually abandoned that once finding approaches to TMS (totally relate with the personality profile). I was able to resolve the dizziness and much of the fatigue, but have ongoing joint pain that involves crepitus/shifting throughout my body (essentially every joint) along with face redness/rash that comes and goes. This lead me to another visit with rheumatology to find I have a positive ANA but nothing that clinical exam and bloodwork can pinpoint a specific diagnosis. I have been given the label of hEDS. My digestive issues still come and go and now I’ve been dealing with lots more anxiety annd insomnia. I work in healthcare as an occupational therapist treating orthopedic injuries and other issues, so this training has definitely triggered fear when I see the struggles people have with hEDS or autoimmune conditions.

I think what’s really hanging me up is the amount of clicking and shifting I feel all over my body. I try and try again to acknowledge and soothe my brain, attempting not to care and create routines of both mind and body practices, but this isn’t something I hear people sharing success stories about. I’m really struggling despite trying to connect with joy, living in the moment, reassuring my brain.

Interested to see what support I can find here. Thanks!!

 

Welcome.

I have a lot of shifting and clicking and popping in my body; I pay no mind to it. The body is funny. Clicking and popping is normal.

At my worst pain in my hip, I was convinced a specific movement with popping triggered my pain. But it was just my fearful brain. I can do the movement with popping now and no longer have pain (and it does sound kinda gnarly, lol).

Check out the free Structured Educational Program. It really helped me and it's helped many others.

 

Hello & welcome

Have you checked out this great post by @Dorado? She was diagnosed with EDS among other things & has a great success story.

https://www.tmswiki.org/forum/threads/how-i-healed-from-a-myriad-of-symptoms.18723/ (How I healed from a myriad of symptoms)

@HealingMe suggested doing the SEP. If you haven't already then its a good place to start.

All the best

Mala

 

Wonderful suggestion, @Mala! I’ve read Dorado’s story many times; it’s so inspiring and kept me going at my darkest times.