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Glandular fever / Hyperacusis / TTTS

Discussion in 'General Discussion Subforum' started by chintand17, Jan 1, 2025.

  1. chintand17

    chintand17 Peer Supporter

    Hi folks,

    this forum has been incredibly helpful and i had posted ~12 months ago. A lot of changes were made over the last ~1 year by leaving a toxic marriage, changing work place and learning to be at peace with the hyperacusis, cpps, neck pain, dizziness and tympani muscles fluttering.

    my symptoms were down to 2/10, the fear response almost disappeared. Neck pain disappeared, dizziness disappeared.

    ... I was back to intensive exercising, enjoying loud places, drinking and nothing really flared up my symptoms. Even if it did, it would go back to baseline in a short timeframe. I also started reducing my SSRI's and it was all going well...

    ..until i suddenly started to experience dizziness at the end of october and i started getting a bit worried but i let it be as the TMS approach suggests.... by mid november it became persistent and i had extreme fatigue. Long story short i was diagnosed by a primary infection of the ebstein-barr virus. So this time it wasn't psychological!!! My blood work confirm inflammation of the liver, signs of viral infections etc..(elevated CRP levels..)

    i understand that >90% people have contracted this virus and it can reactivate in some cases. I am almost certain i never had it and this is my first experience.

    Its been over >7 weeks and i am battling with persistent dizziness, fatigue, off balance and all my auditory symptoms have flared up. The first 4 weeks were hell, i couldn't even move from my couch to the kitchen..

    Even though i know i am dealing with a post viral fatigue period, i am freaking out with the dizziness as it has made me hypersensitive in crowds, supermarkets.. pretty much anywhere.

    Inspite of all of this starting just prior the onset of a viral infection i am worried that the dizziness is actually due to the TYMPANI muscles fluttering as it known to cause mild vertigo/dizziness and if that is the case i am worried that i now have another chronic condition of persistent dizziness which has made me anxious to even walk.

    ...I just cant accept or be at peace that a viral infection can cause dizziness as its not a 'common EBV' symptom. The constant worrying/anxiousness has made my hyperacusis, TTTS and CPPS flared up. its all a vicious cycle...

    i know i can resolve/reduce the TMS symptoms but for that i need to resolve the dizziness/fatigue. I also have noticed that the hyperacusis/ttts would get worse in other viral infections and quickly go back to baseline but now it has been lingering for close to ~2 months and i am feeling helpless again...
     
    Last edited: Jan 2, 2025

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