Hi Aterosin , thanks for your advice , I live in Loja is 4 hours away from Cuenca is a beatiful city too. If you come to Ecuador , Id like to talk with you , beacuse here nobody knows about this syndrome even the doctors. I found this on internet and only people like you can understand the pain and frustation . Please let me know if you come to Ecuador. If you have skype which is , drakke78 is mine . Thank you God bless you.