Daniel L. benign fasciculation syndrome

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Question

Hi! I am 33 year old female. I first started having pain, mostly in my gluteus but also goes around my hip and in my groin about nine months after my baby passed away (About 2 1/2 years ago). Since then I am been in pain daily, stopped exercising and doing things i enjoy. I have just been told the issue is my SI joint and that I have pelvic instability. I have tried everything, and nothing helps the pain other than to not move much. I had another child since then, and about two months after she was born I started having twitching, myoclonic jerks, sleep paralysis, involuntary swallowing and a bunch of other weird stuff. The neurologist diagnosed it as benign fasciculation syndrome and said a cause is unknown and there is no treatment. I am depressed about my situation. My hip/butt hurt all of the time, and now I've got these other issues with the twitching, etc. Does this sound like TMS? I was reading one of Dr. Sarno's books and the personality fits me perfectly. I overthink everything, and have always been anxious. Where do I go from here? Thanks so much!
Tiffany

 

Answer

First of all let me say that I hope you give yourself credit for how much difficulty you’ve faced in the last few years. I am truly sorry for the loss of your baby. Self-compassion is one of the most important things for us TMS-ers to learn. Take some time to reflect on what you've been through and how that might be affecting you now.

To answer your first question, yes it sounds like TMS. Both in the symptoms themselves, the diagnosis from the doctor, and when these symptoms have occurred. That said, I’d encourage you to see a TMS physician if possible – even if that means flying somewhere to see one.

To answer your second question, if you have not yet seen a therapist, I recommend you do so. With the trauma that you’ve endured, it is not surprising that you’d be reacting so strongly with physical ailments. Getting help navigating through that difficult time is really important – especially for us TMS people. Beyond that, I would immerse yourself in the TMS world as much as possible. Read more books (there are so many – I’d recommend Howard Schubiner’s ‘Unlearn Your Pain’), and peruse the Wiki (go through the recovery program). The more you learn about TMS, the more your confidence in the diagnosis will grow. As that happens, you will begin to feel better.

If you have more specific questions, feel free to message me here on the wiki, or email me at: danielglyman@gmail.com

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