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Fear goes down, symptoms get worse

Discussion in 'General Discussion Subforum' started by Alouqua47, Feb 1, 2026.

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  1. Alouqua47

    Alouqua47 New Member

    El miedo disminuye, los síntomas empeoran
    Me siento muy confundido y quisiera escuchar las experiencias de otras personas.
    Siempre creí que una vez que el miedo comenzaba a disminuir —cuando dejaba de analizar el dolor, trataba de mantenerme ocupada, vivir mi vida y usar mi cuerpo normalmente sin miedo a lo que pudiera pasar— las cosas comenzarían a mejorar, o al menos a mantenerse estables por un tiempo, hasta que mi mente gradualmente comprendía que todo era seguro.
    Pero ese no ha sido mi caso.
    Desde que empecé a trabajar en esto, siento que mis síntomas han empeorado. Algunos síntomas que casi habían desaparecido han regresado. No con la misma intensidad que antes, pero ahora muchos de mis síntomas parecen presentarse juntos.
    Las sensaciones en mis brazos no son muy fuertes, pero se mueven constantemente. Y además, siento mucha actividad en todo mi cuerpo: sensaciones neuropáticas, parecidas a nervios, que aparecen durante segundos en diferentes lugares.
    Honestamente siento que estoy peor que antes y más abrumado.
    Quería preguntar si alguien más ha pasado por algo similar.
     
  2. Mani

    Mani Well known member

    Thanks for this.

    You made me realize my Spanish might be a little better than I give myself credit for. Sadly I won't be able to comprehensively respond in spanish

    My thoughts in english:
    Do YOU have an idea as to why it might be getting worse? I understand fully how frustrating this must be but sadly we can't force anything; frankly, we have to do quite the opposite. You're saying you have fully let go, yet you speak of symptoms as your enemies.

    Are you desperate? Did you put a time limit on when improvements were supposed to occur?

    For me personally nothings really happening either after 2-3 months. I just try to appreciate the good days, acknowledge the worse days and try to make peace with my situation as it is.

    If you wouldn't be doing this program, where would you be? Do you suppose you'd be doing better?

    Sending my best wishes your way
     
    JanAtheCPA likes this.
  3. Alouqua47

    Alouqua47 New Member

    Claro, como mucha gente aquí, quiero ver mejoras. Sé que no me voy a curar mañana ni el mes que viene. Es imposible que el dolor o los síntomas en general desaparezcan de un momento a otro, pero no esperaba que las cosas empeoraran. Pensé que se quedarían en un segundo plano, como antes.
    O sea, ya había experimentado alodinia en la pierna izquierda, pero había desaparecido. También tenía sensaciones eléctricas en las mejillas, y también desaparecieron. Ahora ambas manifestaciones han regresado. No entiendo por qué.
    Pensé que todo seguiría con normalidad —días buenos, días malos—, pero no esperaba que se volviera tan inestable. Tengo sensaciones neuropáticas que duran segundos, y todo ocurre en mi cuerpo al mismo tiempo. Me siento invadida. Antes, estas cosas sí ocurrían, pero eran más espaciadas. Estas sensaciones erráticas aparecían de vez en cuando, y lo que siempre persistía eran los síntomas en los brazos y el ardor en las piernas.
    Pero ahora todo junto me desespera, y me esfuerzo por no permitirlo. Pensé que tal vez alguien más había pasado por lo mismo. Quizás al principio el cerebro no quiere entender, o simplemente entra en pánico porque no reaccionamos de la misma manera.
    No me he puesto plazos, pero no puedo negar que me afecta ver cómo algunas personas se recuperan en tan solo un mes, tres meses o seis meses. Y también me entristece ver que algunas personas simplemente se estancan. Creo que ese es el miedo de todos.
     
  4. Cactusflower

    Cactusflower Beloved Grand Eagle

    Este es un fenómeno bastante común. Tu cerebro creó todas esas sensaciones para mantenerte "a salvo" emocionalmente; sin embargo, esa "seguridad" termina limitándote, causándote dolor e impidiéndote vivir plenamente. Ahora estás diciendo: "Quiero una vida plena y no necesito tu ayuda para sentirme seguro", y el cerebro tarda un poco en adaptarse a esta nueva forma de ser. Intensifica el dolor, quizás el miedo o la ansiedad; varía en cada persona. El hecho de que tengas algún tipo de reacción es positivo, aunque sea muy incómodo.

    This is quite a common phenomenon. You brain had created all the sensations to keep you "safe" emotionally...however that "safety" eventually keeps you small and in pain and prevents you from a full life. Now you are saying "I want a full life and don't need your help to feel safe" and the brain takes a bit to catch up to this new way of being. It turns up the pain, maybe turns up fear or perhaps anxiety - it is different for every person. The fact that you have some sort of reaction is positive even though it is very uncomfortable.
     
  5. cafe_bustelo

    cafe_bustelo Peer Supporter

    I've had flares since beginning mind body work that were new and scary, and where I felt worse than I did before I started. This is very common. Someone told me when I first started posting here that symptoms will be up, down, and all around as you begin, and that very much was true. You're going from a middle level of stress to a seesawing period where you're working to reduce your fear, so you'll have some times where you feel calmer and symptoms are less, but other times you'll feel even more stressed out in part because you are scared of the symptoms returning, or intensifying, or the possibility that the mind body approach may not work. It will work, but you have to give it time and unfortunately weather the flares. I have definitely had times when I felt less fear, but my symptoms were higher no matter how much I told myself I didn't care about them.

    As I get further along I'm realizing more and more the connection between emotions and symptoms. I do think the question of why are your symptoms are worse right now is important (i.e. what is going on in your life that is creating tension?), but it may not be something you can consider with a cool head while your symptoms are really high. Do what you can to soothe yourself, even if that's using something physical (I've found a heating pad really helps me) and wait for an "opening" when your symptoms are lower to work on changing your response to them. In the meantime remember that you are not damaged.

    Also, not sure if you've tried this already, but taking a hot/cold shower always helps when I have had neuropathic-type symptoms/allodynia. 3 minutes hot, 30 seconds cold, repeat as much as you like. My PRT practitioner who is also a PT says this is known to be immensely calming to the vagus nerve, which as I understand it is heavily implicated in the TMS mechanism. Again, this is not about fixing your pain or your body, but it can be soothing and relieving which helps get you out of the fear.

    I hope you can translate my response! I have, as Dan Buglio says, forgotten my Spanish :)
     
  6. JanAtheCPA

    JanAtheCPA Beloved Grand Eagle

    It is essential for you to accept this truth, @Alouqua47. It is not just common, it is expected, as I have described in my introduction to the SEP, here, under the section "What to watch out for"
    Welcome to the Subforum for the Structured Educational Program
     

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