Skin colour changes ( temperature ) !

Hi all

I’m new to TMS Wiki, but not new to TMS !

Been on a healing journey 2 years, last 1 year with TMS knowledge.

To date I’ve had almost 100 symptoms ! Some for the duration, some for weeks, months , others for a day

However, few months ago I started to develop something bizarre that I just don’t know how to approach !

My arms, hands, feet turn purple blotchy with the slightest coolness / cold, even indoors opening the fridge. Then any slight warmth, heat, the skin fils with blood and turns red and blood vessels / veins swell ( even washing up in warm water !! )

It’s back and forth all day long , and in heat it’s started to affect skin on my chest, legs too.

Few minutes out of that temp and it disappears or goes the other way !

Had loads of tests and scans to rule stuff out, so I believe it’s TMS - as in it’s an extreme reaction from my nervous system to over dilating and constricting blood vessels in response to slight temperature changes .

But I suppose just looking for anyone who’s ever dealt with this and successfully healed from it ?

Raynauds was ruled out as was erythromyalgia as it didn’t fit their ‘criteria’ !

Also have a slight worry it’s causing damage as my skin never seems to be a normal colour !

 

Hi!

Wow, your TMS brain is looking high and low for ways to scare you. Don’t let it! It’s TMS. Some people get what you describe. I get it sometimes. I try to ignore it and I even say “I refuse this!” And it will go away. Here are some other stories that might help—https://www.tmswiki.org/forum/search/8845515/?q=Purple+feet&o=date&c%5Bnode%5D=2 (Search Results for Query: Purple feet | TMS Forum (The Mindbody Syndrome))

 

@Daisymm76
Lots of !’s in your post illuminate your freaking-out, fear, and anxiety over this new symptom.
Good getting it checked out.
You mention TMS knowledge but your message focuses only on pretty precise descriptions of your symptoms. Nothing about your stress or psychological state or any TMS work you’ve engaged in.. and after all these are the things TMS is truly about.

 

Hi, I did a lot of journaling and unearthed lots of things that I worked through. I have worked with somatics and nervous system tools. But earlier this year I was rushed to A&E with a suspected stroke. It turned out it wasn’t but this then took me back to the medical model of testing again and yes, threw me into fear . They were testing me for all sorts including cancer . This is when these symptoms worsened. So I know it was through fear at this time that it was something serious. I have recently had the medical all clear but I suppose yes I am still assurance seeking that this could too be TMS. In my heart, I truly believe it is but yes, the fear is there that I can’t resolve it, and that’s keeping me stuck now I think .

 

Then go back to doing your work. There are things that still trigger you - which I think most people have even after doing some work…recognize that the work never ends. You might need to keep up with it because you tend to fall back into stress and thought patterns after awhile. Just keep your journal hand and utilize somatic skills regularly (whatever that means for you).

 

Quotable.

 

I had this exact thing. Raynauds/EM-like color changes and blood pooling from heat. Take my word for it and just ignore it, get back to your life. It got better for me when I stopped focusing on it, it took a while though.

This sort of vascular response to heat/cold is normal to some extent, it is an autonomic nervous system response to temperature. TMS can simply magnify it to extremes.

The medical term for the purple/bluish hue when cold is Acrocyanosis. The blotchiness is called Livedo Reticularis, quite common. Its all harmless.

 

@Daisymm76 Wow, here is the exact response you were searching for--somebody who dealt with this and successfully got through it....and provided a name for it!

I can relate to what you're dealing with. I had some really outrageous symptoms a couple times, and it seemed so important to find someone else who had that same set of symptoms.
In the end, TMS is TMS and the answers/successful path forward are the same no matter what symptoms are thrown at us. If you've had 100 different symptoms, you definitely know this.

For me, no real progress was made when I found someone else with my symptoms. That was a great thing to reflect on. It was like I was obsessed with the wrong question and when the answer came, there was no real insight or improvement.

Check this thread out, where it's very similar. The very first response, by @Booble , is excellent and there are some other good ones in there. Sometimes, for me, seeing someone else go through the motions is helpful and can allow me not to spin my wheels.
https://www.tmswiki.org/forum/threads/body-slowly-deteriorating-losing-hope.26291/

 

Thankyou for responding . I read back through your posts - seems you were in the thick of it at the time

 

Thankyou, yes I need to stop seeking reassurance . Many many symptoms have resolved through this work . You are right - finding someone with similar who recovered doesn’t make it go away!!!