Burning/freezing Nerve pain - any succes stories??

@Megatron, Just to give a little bump to this post. How are you doing now? Any progress with your healing? I am in the same situation as you were. My symptoms started back in May 2022. I have almost same symptoms as you had (using past tense, hoping/wishing you got better by now) except two additional. I got diagnosed with Atypical Trigeminal Neuralgia as I am having constant burning pain in my left check. I also have this dizziness like rocking swaying feeling when walking. The other symptoms are same you had like burning sensation all over the body but mainly in feet. Got many many tests, nothing found. I would like to believe all these are mindbody but not able to come to a radical acceptance.

I have another appointment with my neurologist next week.

I would really appreciate if you could update your situation.

@Dorado, what kind of mind-body work did you do? I am trying but everytime I get these sensations, I am freaked out. Then, it is going back to square. Been two year, suffering with these symptoms.

Thank you
Regards

 

How are you now? Any updates on if it was TMS or a true injury to the trigeminal nerve? Im having the exact same symptoms - burning cheeks and constant rocking and swaying.

 

So you had burning in the face and it went away? Was the burning constant?

 

Everyone comes on here asking if someone else has their symptoms. It doesn’t matter. If you have TMS, you can literally have any symptom. The subconscious brain can create anything. But the cure is all the same for every symptom and the people who do the work get better. This wiki tells you everything you need to know! Good luck!

 

Hello

How are you doing with the nerve pain success? I saw a thread that asked for a success story but I'm not very skilled at using this thread to find that post so thought id ask here. Those with severe nerve pain need stories of full recovery I think - myself included - as when it comes and goes or returns badly it can really emotionally get me down

 

Hello, this thread is very old, but I’ve saved it as well, since I’m always looking for people who have symptoms similar to mine, especially this nervous-type pattern, and for success stories. I’ve saved many links that I can share with you.
Sometimes, when my symptoms get stronger, reading these stories helps me calm down and remember that recovery is possible. It gives me hope. If you’d like, I can share them with you. And please forgive my English; it’s not very good, since it’s not my native language.

 

I found the story you mentioned. The person hasn’t been active since 2023, but they basically recovered, because I found the link where they say they were 99% symptom-free and only had a new symptom that basically wasn’t a big deal. Here is the link.
I think many people don’t actually write formal success stories. What happens is that they document their progress in the same post or in the support forums. They come back and comment that they’ve improved, but they don’t end up writing a formal success story. Sometimes I want to believe that those who don’t return to the post simply don’t come back because they truly no longer need


https://www.tmswiki.org/forum/threads/odd-symptom.26078/#post-134911

 

También puedes ver las historias de éxito de Vladan y Dorado. Tenían problemas nerviosos y su filosofía era simplemente vivir la vida sin miedo, sin obsesiones. Uno de ellos solía decir que cuanto menos te importe, mejor.
He visto muchos casos. No sé si funciona para todos, pero básicamente dicen: pierde el miedo y pierdes el síntoma. Todo es causado por el miedo, nada más. El cerebro creó una vía neuronal errónea. Solo tienes que demostrarle constantemente que estás a salvo.
No sé si es necesario llevar un diario, pero quizá sí necesites gestionar tus emociones, porque el miedo se esconde en muchas cosas, como el miedo a no mejorar o la ansiedad constante. No se trata solo del miedo al síntoma en sí, sino del miedo en general, en torno a él.

Este último enlace es de alguien que regresó recientemente al foro. Llevaba 15 años sin sufrir de ardor en todo el cuerpo, pero recayó porque volvió a tener mucho miedo a un nuevo problema de salud, y supongo que la antigua vía neuronal se reactivó. Le hice algunas preguntas y esto fue lo que me respondió.

https://www.tmswiki.org/forum/threads/fearing-tms.33301/#post-169658

 

Hi, I’ve been reading all the posts on neuropathy symptoms. So are you saying that if your biopsy comes back positive with a lot of loss of nerve fibers, then it can not be TMS? I’m confused because elsewhere on this website it says biopsy results can be positive even in normal people. My neuropathy started in my feet only but now is body wide many years later as a result of inflammation from MCAS…but I also see replies saying MCAS is TMS. So now I am very confused as I have real damage from a condition some consider TMS..