Numbness, tingling, electric shocks, paresthesia, allydonia, small fiber neuropathy

I had an EMG test showing, per my neurologist, irreparable nerve damage in radial and median nerve, all resulting from the nerve entrapment in carpal tunnel. The same neurologist told me the story how he once saw a patient with chronic pain in one hand. EMG test, however, showed much more degradation in the hand that was pain-free. When I inquired that it may bring in questions about value of the EMG test, he still insisted that EMG was the best indicator of nerve problems.

Guess what, I miraculously (to my neurologist, not to me!) recovered by taking the TMS route, doing emotional work and meditating. My neuropathy is long gone, along with all other terrifying symptoms in my hands. I would let you all make your own judgment about neurology tests.

 

Hello, I am the OP and am just checking in to say I very rarely get symptoms anymore. Sometimes I get some numbness in certain positions and such. But nothing like I had when I posted this.
I am living proof you can move on from this. Thank you Dr John Sarno and everyone on this forum who contributes.

 

@TG957 and @Sunrise : That's music to my ears. After all my tests came negative, I have decided to take TMS route. I still have to rule out with skin biopsy but after reading this thread, decided not to have skin biopsy. But part of my brain tells me that this TMS route might not work. My main symptoms are, 1) Burning, pins & needles and tingling pain in my left hand and left foot. 2) Left toes feel like they are on fire. 3) Dizziness only when walking 4) So much fatigue all day 5) Left Cheek burning (as per MRI, my left trigeminal nerve is touched by an artery).

My full story (Heads up: Long post and apologies for that.)
https://www.tmswiki.org/forum/threads/weird-dizziness-tingling-fingertips-burning-left-cheek-feet.27517/ (Weird Dizziness, tingling fingertips, burning left cheek & feet)

I am not fully into TMS route but my thinking has changed since I joined this forum. I have just started 30 mins meditation. So I noticed one improvement, I am not getting this pain every day as before but four or five times a week. But whenever it returns, it returns with severe pain, that's when I am losing hopes that this TMS route wont work. I still need to start, journaling, reading Dr. Sarno's books, and any further advises by Dr Sarno.

Please give me some hopes.

Thank you

 

@krk_mindbody
Take stock of how you feel in your body when the pain returns. How do those emotions feel: a heaviness or lightness, a color you might associate with that emotion, do you embrace and accept this is what todsy. Rings or do you try and push the feelings away…or do you hang on to them, obsess and fret. All of these things are similar to what I (and probably most tmsers) feel when symptoms return, flair up, or present themselves in a different way.
A change of mindset spin on these is to just simply feel how you feel. Accept it’s how you feel today. Remind yourself that not everyday is like today (progress), and that today’s success is the opportunity to practice “feeling” even when it sucks.
Being real with yourself: feeling the emotions, noticing possible triggers, reminding yourself of it being temporary gives your mind some balance between hanging out only in a dark place or glossing over everything with too much fake “it’s all right”. It’s self-compassion.
I think you are taking great steps to your wellness! Taking responsibility for yourself and choices, slowly working on your belief system about everything you are going through.

 

@Cactusflower Thank you so much for kind and encouraging words. I am so grateful to you. Sure, I will follow your advise. Wish you good health.

 

The most important principle of TMS recovery is to understand that your recovery will be slow and non-linear. It is not a magic pill that would work in 5 minutes. There will be setbacks, flair-ups (or extinction bursts as named by Sarno) and very, very, very long plateaus. What you achieved with 30 minute meditation is HUGE. It took me months to see results from meditation. But I was patient and I recovered. This is the only thing you need to remember and follow, with tremendous amount of patience. Doubt is your main enemy, it will kill your recovery.

Oh, and the last thing: If the magic pill existed, you would not be on this forum. Period.

 

Hi Sunrise,
How are you doing now?

 

How are you feeling now? Have you had a small fiber neuropathy biopsy?

 

I was reading through this whole thread and to see you go from panicking and frustrated to see your updates and then to see youre feeling much better is genuinely amazing. I'm so happy for you my friend.

I've experienced dizziness for over a year and then 5 weeks I was massaging my jaw and sinus (got punched on my jaw and it feels off ever since), I pressed in my jaw just infront of my ear and then a few minutes later for weird puslsing/heart beat type sensation in my temple area of my head. I then got a dripping feeling going around the left side of my head almost as if I was bleeding. Of course this caused a lot of panick and stress. After a week I had lost appetite and went to hospital - got a ct scan was all clear for a bleed in the brain. Have had bloods done which have came back normal.

A day after the hospital I developed burning in my feet mainly but sometimes my hands aswell. Noticed it got really bad when I was attending my doctor's appointment (very upset and panicking). The burning comes and goes, the head sensations come and go. For a few days I had tingling, like spider webs all over my head, itchy on my forehead. For the last few days I've been experiencing nerve sensations which feel like rain drops hitting different parts of my body (hands, legs, arms, feet etc).

I'm writing my experience so others can relate hopefully and we can help each other. I know I definitely have tms as everything sarno describes is basically me. I stress and worry and have always felt pains as a child. I have been through a lot emotionally (very sensative).

I'm curious has anyone had these type of symptom's? I suppose this is feeding into tms by asking if people are similar (probably fear based). I am yet to try mediation for my symptom's but I definitely will. I am determined to over come this as I want to live my life to the fullest, for so long I've lived in fear of everything, not anymore.

I hope that all of you are feeling better and for anyone who ever comes across this in the future, don't lose belief that you'll get better. God it's hard and sometimes you feel so alone and trapped but don't give in to the fear. I hope to see this thread come back to life.

 

Hi, Pat,
Yep. I’ve got the weird neurological symptoms. It really is strange and scary, but it’s TMS. Believe all the success stories on this thread. They are all proof we can recover.

 

Hi Diana, lovely to speak with you. Thank you for the reply. Yes I fully believe it is tms and I'm ready to dedicate myself to healing. It's a wild ride and so difficult at times but it really gives you appreciation for the simple things in life.

 

Oh my gosh, yes! That reminds me of a recent success story posted by @JohnDellatto https://www.tmswiki.org/forum/threads/pain-free-from-hypermobile-ctd-fibro-dx-20-years-of-pain.29325/#post-155808 (Pain free from hypermobile CTD/fibro dx, 20 years of pain)

He went through quite the ordeal. But at the end, he said something along the lines of what you’re saying:

“Some people take a LONG TIME. At the 4th year I knew 100% I had TMS and it still took over another year. You're not doing it wrong. There's no such thing. There are no setbacks. It may be the most difficult challenge of your life but it'll be the greatest prize. You'll receive your entire life back and more. A limitless body. You wont fear getting older and having 'wear and tear'. You'll have the edge over 99.999% of the population. Don't give up just because it's taking a long time. It's everything you imagine it to be. All of my disappointments in life were overridden with this.”

I love reading stuff like this!

One thing I wanted to mention to you that has helped me a lot. It’s a little book by Claire Weekes, called Hope and Help for Your Nerves. The book made me realize that a lot of these strange sensations are being caused by Adrenaline overload. My nerves are shot. Dr. Weekes describes it all perfectly—and how to get your nervous system to calm down. About half of my weird sensations —water dripping down my back, tingling burning in my thighs, for example—have disappeared. But some still remain. I’m just working on calming my whole life down. I’ve gotten people out of my life who stress me. I stopped reading the news, because it stresses me out too much. I stopped myself from worrying about a lot of things. And it’s slowly working!

 

Thank you again for your lovely comment. Yea being 27 I'm determined to get over this and live my life to the fullest, no more fear and worrying.

Yea it makes perfect sense what youre saying, I know I've walked around so tense and stressed, obviously that's going to wear our nervous system down tremendously but God created us and blessed us with an amazing body and one that can and will heal given its in the correct state.

Thank you for the book suggestion, I'll order that today. Crazy to say but healing back pain is about to be the first book I've read for aslong as I can remember lol a good book to start with I think

 

Yes! That’s a great book to start with. I’m glad you got the Claire Weekes book. It will help! Consider doing this free class on this wiki. The Structured Educational Program. We call it SEP for short. It is really amazing and it’s helping a lot of people.

 

Wow thanks so much, I wasn't aware of the free class, this will definitely help me.