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Self care

Discussion in 'Structured Educational Program' started by Bowen, Jul 18, 2025 at 8:41 AM.

  1. Bowen

    Bowen Peer Supporter

    Today's task is to post about self-care and having fun and the importance of it.

    my problem is that the pain levels have got to such an extreme that I cant find anything that I find joy in.

    I have been going through this more than twenty six years and I have had many things that I have enjoyed doing over the years however now I am at a point where whenever I go to do something I enjoy it just flares the pain up to the point where I cannot continue.
     
  2. Diana-M

    Diana-M Beloved Grand Eagle

    @Bowen
    This is just your TMS brain trying to trap you. There is ALWAYS a way to have joy. Always. Even just looking out the window. I say this as a true friend because I have very limited capabilities right now. At first, I thought my whole life was cut off. But in the last few months, I’ve had a totally different attitude. I think of everything as possible— Even if I have to do it another way, or a way I’ve never thought of before. Yesterday, I was thinking I would love to dance because they say it’s really healing for TMS. Of course, I can’t possibly dance right now. I have no balance and I have to hold onto something just to stand up. I was listening to some music later that day that sounded so good. I wanted to dance automatically and I started just kind of moving a little in my chair. And then I laughed because I was actually dancing! And it was fun and it felt good. Open your mind to possibilities and you will find fun all around you. I promise. It will make you feel so much better— And so much hope! Don’t give in to the darkness.

    I finally admitted to myself that I block myself from doing things because I’m actually angry that I have TMS— I’m angry that I can’t do things the way I want to or the way I used to. But that’s only hurting myself. And it certainly won’t help me get better. Besides, who wants to be sad?
     
    Last edited: Jul 18, 2025 at 11:36 AM
    Bowen, NewBeginning and Sita like this.
  3. Bowen

    Bowen Peer Supporter

    Thats a really good way of going about it and I will try and adopt it.

    I certainly do not want to be sad the TMS Brian just keeps telling me its impossible to find joy in this much pain because the pain is constant and unrelenting. It is never not there trying to rob me of my joy
     
    Diana-M likes this.
  4. Diana-M

    Diana-M Beloved Grand Eagle

    I’m so sorry you’re in constant pain. That sucks! Maybe if you get a little fun going, it’ll distract you from the pain a little bit. Mentors like Alan Gordon and David Hanscom all urge that fun will create new neural pathways in your brain and go around the pain pathway. Turning it off.
     

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